I Slay Sickle Cell Disease is a non profit organization dedicated to promoting unity and outreach within the communities of people affected by sickle cell trait and disease. By empowering, educating & advocating for those living with Sickle Cell disease (SCD) we hope to cultivate productive community engagement and provide support services for vulnerable adults & their families.
WHAT IS SICKLE CELL DISEASE?
Sickle Cell Disease is a group of inherited blood cell disorders that causes the hemoglobin protein (created inside of red blood cells) to form stiff rods within the red blood cells distorting them. Healthy blood cells are circular flexible cells that carry the hemoglobin protein. Hemoglobin gives blood the red color and is responsible for moving oxygen throughout the body. Due to lack of oxygen, Sickle Cell Stunts the lifespan of red blood cells (RBC) causing a shortage of healthy blood cells in the body. Since the sickle cells are sharp and stiff, they block the flow of blood causing vaso-occlusive crisis (acute pain crisis). Sickle Cell disease is inherited when both parents have either SCD or the SC trait. If one parent has SCD it is still possible to pass the trait onto the child.
ABOUT OUR FOUNDER
I Slay Sickle Cell Disease was founded by Kutana Council, CEO of Divalyfe LUX clothing & events. Kutana Council who is very passionate about this organization because she was born with this painful disease. Her Lyfe long dream has been to raise money and bring awareness to what a person living with this disease go through on a daily basis.
The goal is to educate every Sickle Cell Warrior to know their sickle status, or geno type, to know what is going on with their bodies before, during & after crises and how to Take preventative measures to ensure we are not having more babies with SCD. Decrease the adult mortality rate, and provide continued education and resources for sickle cell patients as well as the medical community.
SCD patients live with pain on a daily basis, which can cause stress and anxiety, it is also our goal to Uplift & empower SCD patients to have a voice and tell their battle stories to let other warriors know it is ok to live your lyfe and follow your dreams under any circumstance. Never give up!
I SLAY SCD FACTS
- 1 in every 365 African-Americans are living with SCD.
- Sickle Cell Disease is the most common genetic disorder in the world, affecting 20-25 million people globally.
- There is a high mortality rate for adults with SCD.
- Most SCD patients suffer from chronic pain crisis on a daily basis.
- Sickle cell patients are treated on the same level as cancer patients.
SERVING OUR COMMUNITY WITH LOVE
ISSCD has partnered with organizations in our community to raise awareness! Register with us to stay up to date on our upcoming events.